Telehealth for Hemophilia: Accessible Specialist Care

If you live with hemophilia far from a hemophilia treatment center (HTC), you know the drill: a long drive, a day off work, maybe a night in a motel, all for an hour with the people who understand your condition. Dr. Joe Moleski, Hemo-Health's physician, lives with hemophilia himself. This article explains how hemophilia telehealth works, step by step, what it can do, and what it can't.

Can hemophilia care be done by telehealth?

Part of it, yes. A lot of hemophilia care is conversation: how many bleeds you've had, how your treatment is working, what's worrying you. A video visit handles that well. Patient guidance from the National Bleeding Disorders Foundation (NBDF) says telehealth lets you describe symptoms, show your care team an area of concern on camera, and review how your treatment is working so it can be adjusted. Several members of a care team can join one call [1].

Telehealth is not a full replacement for in-person care, though. The research on hemophilia telehealth is still small:

• Ireland, 2020: At a national hemophilia center in Dublin, 79% of patients who had video or phone visits said access improved, and 82% said visits were less of a hassle. Missed appointments fell by 60%. The authors still saw a future of blended care: video plus face-to-face visits, because joint checks and blood tests need people in the room [2].
• United States, 2020: At one pediatric HTC in San Diego, 11 patients completed telehealth annual visits. Eight of the 11 visits had technical problems, and 9 of 11 patients (81.8%) said they would prefer in-person visits in the future [3].
• Scoping review, 2019: A review of 16 studies found only preliminary evidence that telehealth helps people with hemophilia manage their care. Remote monitoring did not clearly improve joint health [4].

So the honest answer: telehealth can make care easier to reach. It works best alongside in-person care, not instead of it.

What happens during a hemophilia telehealth visit?

Here is how a visit with Hemo-Health works.

1. Request a visit. Fill out the online intake form at form.jotform.com/261395441645057, or call 636-628-6604.
2. Gather your records and questions. Useful things to have ready: recent lab results, your bleed and infusion log, a list of your medicines, the name of your HTC and local doctor, and your questions written down. Treatment logs help a doctor see how your treatment is working [1].
3. Have a secure video visit with Dr. Moleski. You talk through your history, recent bleeds, joint pain and day-to-day life. You can show a swollen joint or a bruise on camera [1].
4. Get recommendations and ongoing support. After the visit you get recommendations and a plan for follow-up.

When you contact us, we'll explain how lab tests, prescriptions and visit summaries work for your situation. Coverage depends on your plan; ask your insurer, and ask us when you contact us.

What still needs an in-person visit or lab test?

Some things can't happen through a screen. NBDF's guidance lists these [1]:

• A hands-on physical exam. A doctor can see a joint on video but can't feel it or fully test how it moves. The Dublin team found joint range of motion could be checked on video but needed an in-person visit to assess it properly [2].
• Lab tests. Blood has to be drawn in person.
• Physical therapy checks. NBDF says lab work and physical therapy evaluations should happen in person at least once a year [1].
• Some bleeds, injuries and joint problems that need a closer look [1].

That's why we think of telehealth as one part of a hybrid plan. One parent in NBDF's article said she would welcome doing every other checkup by video [1]. Your HTC is the right place for the yearly hands-on visit.

What if there's no hemophilia treatment center near me?

For many people, "hemophilia treatment center near me" turns up nothing close. A few examples from the national HTC network:

• Montana has no HTC in the state. The regional network's page lists Montana as "None at this time" [5]. Other centers in the same regional network include ones in Boise, Salt Lake City, Aurora (Colorado), Spokane and Seattle [5]. The University of Colorado's HTC holds outreach clinics in Billings and Missoula for people who live far from its Denver-area center [6].
• North Dakota has one HTC, in Fargo [7].
• Arkansas has one HTC, in Little Rock [8].
• Indiana has one HTC, in Indianapolis [9].
• Louisiana's two listed HTCs are both in New Orleans [8].

Distance matters, but so does staying connected. In a CDC-led study of 2,950 males with hemophilia in six states, published in 2000, those who got care at an HTC had about a 40% lower risk of death [10][11]. HTCs bring together hematologists, nurses, physical therapists, social workers and other specialists who treat bleeding disorders [11][12].

So if your HTC is a long drive away, please don't drop it. Ask whether it runs outreach clinics or its own telehealth visits, and plan your in-person visits around them.

How does telehealth work alongside my HTC and local doctors?

Hemo-Health is not a hemophilia treatment center, and it does not replace one. It works alongside your HTC.

A simple way to picture it:

• Your HTC: comprehensive care, the yearly hands-on visit, lab work, physical therapy and the full team [1][12].
• Your local doctor or clinic: everyday health care close to home.
• Hemo-Health: specialist care from home between those visits. That means follow-up, questions, treatment-plan review and second opinions by video with a physician who lives with hemophilia.

If you're unsure about a treatment plan, see Getting a Second Opinion on Your Hemophilia Care. For an overview of what we offer, see Hemophilia Care.

Telehealth is not for emergencies. A bleed that can't wait needs 911 or the nearest emergency room, not a video call.

Where is Hemo-Health available?

Availability depends on medical licensure and on where you are located at the time of the visit. Check the current list on our States We Serve page.

We also have state guides on local resources and HTCs for Indiana, Arkansas, Montana, Louisiana and North Dakota.

Frequently asked questions

Is a hemophilia telehealth doctor a replacement for my HTC?

No. Telehealth works best as part of a hybrid plan. Physical exams, lab draws and physical therapy checks still need in-person visits, at least once a year according to NBDF guidance [1]. Stay connected to your HTC.

What do I need for a telehealth visit?

A phone, tablet or computer with a camera, a steady internet connection, and a quiet, private spot. Have your bleed and infusion log nearby [1], plus your medicine list and recent lab results.

Can a video visit check my joints?

Partly. You can show a joint on camera and describe pain or swelling. But a full joint exam needs hands-on assessment in person [1][2].

Does telehealth for hemophilia actually work?

The research is still limited. Patients at one Irish center said it improved access [2]. In one small US pediatric study, most patients said they would prefer in-person visits in the future [3]. A 2019 review found only preliminary evidence of benefit [4]. That's why we use it alongside in-person HTC care.

Become a patient

If you'd like specialist care from home, start with our online intake form at form.jotform.com/261395441645057 or call 636-628-6604. You can also visit www.hemo-health.com.

In an emergency: A bleed in the head, throat or abdomen, or any serious injury, is an emergency: call 911 and tell them you have hemophilia. Then contact your hemophilia treatment center (HTC).

Sources

1. National Bleeding Disorders Foundation (HemAware). What Parents Should Know About Telehealth Appointments (2021). https://hemaware.org/life/what-parents-should-know-about-telehealth-appointments. Accessed 2026-10-21.
2. O'Donovan M, et al. Telehealth for delivery of haemophilia comprehensive care during the COVID-19 pandemic. Haemophilia. 2020;26(6):984–990. https://pmc.ncbi.nlm.nih.gov/articles/PMC7537516/. Accessed 2026-10-21.
3. Wang C, et al. Utilization of Telemedicine for Comprehensive Visits in Patients with Inherited Bleeding Disorders during the COVID-19 Pandemic. Blood. 2020;136(Suppl 1):10–11. https://pmc.ncbi.nlm.nih.gov/articles/PMC8568486/. Accessed 2026-10-21.
4. Qian W, et al. Telehealth Interventions for Improving Self-Management in Patients With Hemophilia: Scoping Review of Clinical Studies. J Med Internet Res. 2019;21(7):e12340. https://pmc.ncbi.nlm.nih.gov/articles/PMC6652120/. Accessed 2026-10-21.
5. National Hemophilia Program Coordinating Center (NHPCC). Mountain States Regional Hemophilia Network. https://nhpcc.org/regional-hemophilia-networks/mountain-states. Accessed 2026-10-21.
6. University of Colorado Anschutz, Hemophilia and Thrombosis Center. Outreach Clinics. https://medschool.cuanschutz.edu/hemophilia-thrombosis/clinic/clinics/bleeding-disorders/outreach. Accessed 2026-10-21.
7. National Hemophilia Program Coordinating Center (NHPCC). Northern States Regional Hemophilia Network. https://nhpcc.org/regional-hemophilia-networks/northern-states. Accessed 2026-10-21.
8. National Hemophilia Program Coordinating Center (NHPCC). Great Plains States Regional Hemophilia Network. https://nhpcc.org/regional-hemophilia-networks/great-plains. Accessed 2026-10-21.
9. National Hemophilia Program Coordinating Center (NHPCC). Great Lakes States Regional Hemophilia Network. https://nhpcc.org/regional-hemophilia-networks/great-lakes. Accessed 2026-10-21.
10. Soucie JM, Nuss R, Evatt B, et al. Mortality among males with hemophilia: relations with source of medical care. Blood. 2000;96(2):437–442. https://pubmed.ncbi.nlm.nih.gov/10887103/. Accessed 2026-10-21.
11. National Bleeding Disorders Foundation (Steps for Living). Hemophilia Treatment Centers. https://stepsforliving.bleeding.org/treatment/where-seek-treatment/hemophilia-treatment-centers/16-25. Accessed 2026-10-21.
12. Centers for Disease Control and Prevention (CDC). Hemophilia Treatment Centers (HTCs). https://www.cdc.gov/hemophilia/treatment/treatment-centers.html. Accessed 2026-10-21.